The name of the association is the Williams Syndrome Association, hereafter referred to as the WSASA
The WSASA functions as a welfare organization and aims to promote the interests of William's Syndrome people and of children who suffer form infantile hypercalcaemia.
The WSASA is affiliated to the world-wide organization known as the William's Syndrome Foundation (WSF), which has the same aim, and has its headquarters in the United Kingdom.
The mission of the WSASA is to promote the interest of all people suffering from the genetic deficiency known as William's Syndrome or infantile hypercalcaemia.
The aims of the WSASA are principally to:
5.1. Make the general public in South Africa aware of the existence of the syndrome.
5.2. Facilitate as far as possible the early diagnosis of sufferers in order to save lives and
to improve the quality of life so that they are enabled to make a meaningful contribution
to their families, the community and the nation.
5.3. Within the perimeters of the available resources, to collect as much existing information and to initiate research in order to assist sufferers in South Africa.
5.4. Based on available information, to make parents, caregivers and interested parties aware of the possible life threatening conditions that can accompany the syndrome.
5.5. Within the perimeters of available resources, to render support to sufferers, their parents or caregivers in order to help the sufferers reach their full potential.
5.6. Within the perimeters of available resources, to create a safe working environment for adult sufferers of William's Syndrome and to assist them to develop their potential with regard to the labour market.
5.7. Within the perimeters of available resources, to make the educational fraternity of South Africa aware of he syndrome and the educational challenges it presents.
5.8. Within the perimeters of available resources, to make medical science aware of the syndrome.
5.9. Within the perimeters of available resources, to make available the medical diagnostic health chart to doctors.
6. Modus Operandi to achieve these aims
To achieve these aims, the WSASA can conclude agreements with any organization or institution.
7. Legal Profile
The WSASA is in terms of the law a voluntary association with its own legal profile and its power of attorney is its representative body.
For the purposes of public control over the funds of the WSASA, the WSASA has been registered as an Article 21 company and has applied for exemption from Income Tax in keeping with the applicable legislation
8.1. their parents or caregivers, other interested parties and donor representatives
8.2. The day-to-day affairs of the WSASA are managed by an executive of at least five members, who have been elected at an annual general meeting consisting of sufferers, their parents or caregivers and representatives of donors.
8.3. The executive of the WSASA consists of:
8.3.1. The Chief Executive Officer
8.3.2. The Deputy-chief Executive Officer
8.3.3. The Secretary
8.3.4. The Public Relations Officer
8.3.5. The Treasurer
8.3.6. A maximum of three experts nominated by the annual general meeting, or co-opted by the executive.
9. Powers of the WSASA
The WSASA has the following powers:
9.1. To buy, sell, hire, rent, exchange, receive as a gift, mortgage or use any legal means to trade with fixed or moveable property.
9.2. To borrow or lend money, to invest at an established bank or financial institution and to withdraw money.
9.3. To conclude contracts.
9.4. To take legal action in any court of the Republic of South Africa which has the necessary legal competence and to defend any legal action taken against the WSASA.
9.5. To deal with any other legal matters.
10. Meetings of the WSASA
The activities of the WSASA are organized by the following meetings:
- 10.1. Annual General Meeting:
An annual General Meeting is held annually after the audited financial statements have been received.
Notice of the Annual General Meeting must be sent three months in advance to all registered members.
Registered members who cannot attend the Annual General Meeting have the right to vote by proxy through another registered member or a delegated person. Such delegation must be recorded on the official form reserved for that purpose.
The Annual General Meeting receives reports from:
- The chief executive officer or someone representing him
- The public relations officer
- The auditors
- The treasurer
The Annual General Meeting:
- Approves the budget
- Chooses the executive for the following year. All members of the executive may be reelected without restriction of term.
- Takes decisions based on majority vote except in respect of changes to this constitution and the dissolution of the WSASA, where a\75% majority vote in favor of the resolution is required.
- Changes to this constitution must be presented to the Director of Fundraising for approval.
The Executive of the WSASA meets at least twice a year or as often as the chief executive officer deems necessary.
Any member of the executive may request the chief executive officer to call a meeting if the member deems it necessary.
A quorum of the executive is present if one more than half of the serving members are present
The Executive controls the WSASA resource material, as well as staff, moveable and immoveable assets, funds and the aims of the WSASA
Should the members of the WSASA resign en bloc, the chief executive officer may call a special General Meeting to elect a new executive.
If a member of the executive resigns or dies, the position will be filled from the ranks of the membership of the WSASA.
11. Use of Funds and Property
The funds and property of the WSASA may only be used to promote the aims of the WSASA. No part may directly or indirectly benefit any person, except as payment in good faith of a reasonable wage to an official or employee of the WSASA for actual services rendered.
12.1. Financial year:
The financial year of the WSASA covers the period 1 March of any specific year to 28 February of the following year.
The executive nominates an independent auditor annually to audit the books of the WSASA and to draw up financial statements.
The executive nominates at least three members and/or officials, whereof any two are required to sign all documents, including bank withdrawals, which pertain to the finances of the WSASA.
The members of the WSASA, the executive or employees will not be held accountable for any loss that the WSASA might incur as a result of the actions taken by the WSASA in the realization of its aims, or by any member endeavoring to perform duties, except if the damage or loss is a result of a member's dishonesty or deliberate negligence.
13. Survival and Dissolution
The WSASA will continue to exist until seventy-five percent of the members present at a special or routine annual general meeting decide to dissolve the WSASA. Notice of the proposal to dissolve or disband the organization must be handed at least three months before the meeting to all registered members of the WSASA.
After it has been decided to dissolve the WSASA, the meeting that has made the decision must appoint one or more liquidators to take possession of the assets of the WSASA and to administer the estate, with the understanding that the liquidators should sell as many assets as possible by public auction or public tender, in order to settle any debts incurred by the WSASA. The balance of the estate should be transferred to any other non-profit-making organization which has aims that are closest to those of the WSASA.
14. Copy of this Constitution
Any member of the WSASA has a right to obtain a copy of the constitution at own cost from the head office of the WSASA.
15. Official Languages
The official languages of the WSASA are English and Afrikaans. Should the constitution be translated into any other languages, the English and Afrikaans renditions will be accepted as valid originals.